GLUT-1 Deficiency Syndrome

raising awareness, sharing experience

About Us

We are a family in the UK whose youngest member has recently received a diagnosis of GLUT-1 Deficiency Syndrome.

The purpose of this website is to share what we learn about this rare condition, and hopefully to learn from others as we try to do the best for our son.

The site was launched on 31st January 2010 - if you would like to get in touch in the meantime please contact us here.

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